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Navigating Autoimmune Challenges: A Personal Journey

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Chapter 1: Understanding Autoimmune Polyglandular Syndrome

The immune system, typically our body's defense against infections, has turned against me, targeting the very organs that keep me healthy. This has led to my body systematically destroying my endocrine glands.

In my family line, a genetic predisposition has caused my immune system to attack essential organs. This pattern is not random; rather, each episode of physical or emotional stress seems to trigger this relentless self-sabotage. Welcome to the Autoimmune Polyglandular Syndrome (APS) experience, specifically APS type 2. As I age and encounter new stressors, I anticipate the immune system will continue its assault on my body.

Autoimmune Polyglandular Syndrome Signature Menu

Starters

  • Vitiligo: This involves the destruction of skin cells that produce melanin, which protects against UV rays.
  • Underactive Thyroid: The thyroid, which regulates heart rate, digestion, and a myriad of bodily functions, has been compromised.

Mains

  • Primary Adrenal Insufficiency: My adrenal glands, located atop my kidneys, struggle to produce essential hormones like cortisol and aldosterone.
  • Type 1 Diabetes Mellitus: My pancreas can no longer create insulin, a vital hormone for regulating blood sugar.
  • Pernicious Anemia: My stomach lining is damaged, preventing the absorption of crucial vitamin B12.

Desserts

  • Celiac Disease: My small intestine has been rendered incapable of absorbing nutrients due to gluten intolerance, often accompanied by skin rashes.
  • Alopecia: My hair follicles are affected, leading to itchy and irritated patches.

Petit Fours: More complications lie ahead, including Parkinson's disease and Stiff-man syndrome.

The endocrine organs, which play a crucial role in regulating hormones, often go unnoticed. In today's world, organ meats are frequently avoided, making it challenging to appreciate the significance of these vital glands. The complexity of their functions is something that cannot simply be replicated with technology; it requires intricate medical devices and monitoring systems.

Every day, I find myself performing the roles of my pancreas, adrenal gland, and thyroid through a regimen of medications, insulin, and vitamins. If your endocrine system is functioning well, take every precaution to protect it—these organs are irreplaceable. Fortunately, advancements in technology are making life a bit easier, especially compared to what my ancestors faced.

Key Endocrine Glands to Protect:

  • Adrenal glands
  • Body fat
  • Hypothalamus
  • Ovaries
  • Pancreas
  • Parathyroid glands
  • Pineal gland
  • Pituitary gland
  • Testes
  • Thymus
  • Thyroid gland

Terminology Related to APS:

  • APS: Autoimmune Polyendocrine Syndrome
  • APS 2: Also known as Schmidt's or Carpenter Syndrome
  • Autoimmune: The body mistakenly targets its own tissues
  • Celiac Disease: Another term for Coeliac disease
  • Type 1 Diabetes: Often referred to as late-onset or Type 1.5 Diabetes

For further reading:

  • Explore Schmidt syndrome or Autoimmune Polyendocrine Syndrome Type II at the Autoimmune Association.
  • Check out "Autoimmune Polyglandular Syndrome Type 2: The Tip of an Iceberg?" on PMC (nih.gov).

Over to You:

Are you also experiencing similar autoimmune challenges? Are you managing conditions like diabetes, thyroid issues, vitiligo, or adrenal insufficiency? Does this condition run in your family?

Chapter 2: Living Positively with APS

In the first video, "Your Body in Balance - Part 5 - Dr. Neal Barnard - Thyroid, Healthy Hair & Skin," Dr. Barnard discusses the importance of thyroid health and its impact on overall well-being. His insights can provide valuable information for those grappling with similar endocrine challenges.

The second video, "Can a keto diet eliminate cancer growth? Dr. Thomas Seyfried says yes," examines the potential benefits of dietary choices on health outcomes, particularly in the context of chronic illnesses.

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